06 January 2013


It's been almost a year since this Odyssey began. I am going to bed tonight (the day of the week Eddie collapsed) feeling so grateful, and so happy to have Eddie sleeping soundly down the hall. He is more and more a normal four year old every day, even has started doing flips over the furniture and running into parking lots. We are starting to get our family's life into a more sustainable routine. Even though most of what we all do each day is informed by having Eddie as a part of our family, I think we feel we can breathe a little easier now.

A new look for a new year
(trying on glasses for fun while Mom chose hers)


  1. We are so THANKFUL Eddie is trying on glasses! Thanks to all those who allowed Eddie a new life. We all know that He is just supposed to be here! He will have a Life with real experiences he would never have had. We are all blessed! WE LOVE YOU EDDIE!

    'Grandpa D'

  2. I was just thinking about the Harpers as January came around. So grateful to hear that Eddie is doing so well. You have all been wonderful examples of faith and perseverance through so many unimaginable trials. Love you guys! Happy, Happy New Year! :)

  3. That is so awesome! We've been wondering how he is doing ! So happy he is doing well!