30 March 2012

There's Always Something . . .

Consistent with previous comments about how unpredictable things can be around here, Eddie will be going back into the OR this evening to replace his Berlin pump. Fibrin built up quickly in his pump overnight and, after talking to doctors at Berlin Heart (the company), we've decided to put a new pump in place to eliminate the risk of clotting and stroke.

This isn't necessarily unexpected, but it also isn't exactly normal. Typically, fibrin builds up over days and weeks rather than hours. These fibrin deposits sometimes dissolve or break free and float harmlessly through the bloodstream. However, they can eventually form embolisms (clots) and, if those end up going to the brain, may cause a stroke. Replacing the pump is the safest way to avoid these risks altogether.

Of course, pump replacement comes with its own risks. We haven't had the consult with surgery yet so we don't know the specific details of how they will proceed. We do know, however, that this will not be an invasive procedure and Eddie will not be required to go on bypass. Rather, the pump can be unfastened externally after the doctors clamp the valves shut. So in essence, while the pump is changed out, Eddie's blood will stop circulating through his body for 1-2 minutes which the doctors assure us is well within the safe zone.

So yet again, we're grateful for wonderful doctors, generous friends, family, and co-workers, and everyone else that is keeping Eddie in their thoughts and prayers. Procedure is scheduled for 5pm PDT.

Finally, in yesterday's post I mentioned that we're bound to run into "hiccups" from time to time considering Eddie's overall condition. Take a look at the video below for a more literal take on the subject :-) We love you all.


  1. What a patient little guy. Hiccups have a way of driving me crazy. It's absolutely wonderful to see Eddie SMILE! We pray that all goes well with replacing the pump. It would be wonderful you could ALL get a good night's sleep. A few more hours and we'll be there with you. Think of things we can do to help! We love you!
    MOM & DAD

  2. I am with you!!!!!!God bless Eddie and all of you!

  3. Loved the video. Praying that all goes well in the OR for Eddie. Glad to hear it is not invasive this time. Love you guys!

  4. Hope all goes well with the surgery tonight. We love you guys. Hang in there and thank you so much for keeping all of us posted. Loved the video of Eddie. He is so sweet.