Embarassing, really . . . that it has been over a month since the last time we wrote. So many things continue to happen and there is no shortage of things to write about, but going back to work and summer break have really wiped us out.
Considering the ups and downs, the close calls, and nerve-wracking months leading up to Eddie's transplant, it is a blessed fact that Eddie has recovered very well in the 2+ months since the operation. Not even a bandage is left . . . just angry scars which will fade over time. He smiles readily and wrestles with brothers and sisters. He walks the stairs and sings and loves to read . . . nothing sweeter than seeing brother reading a book to him in the library yesterday.
For me, the months in the ICU seem like a distant memory. Sarah may feel differently. It was as if we stepped into an alternate reality . . . where deeply invasive surgeries and toxic medications were the norm . . . where such treatments were in fact demonstrations of love and generosity from total strangers. These strangers, soon to become fast friends, were reaching the limits of their professional wisdom and were tapping into their surprisingly vast stores of creativity.
We thank God every day for those beautiful nurses and doctors . . . we miss them terribly and feel a surge of strength when we make surprise visits to the ICU while waiting for Eddie's clinic visits.
Family, friends, neighbors have all done so much and have held our hands and soothed pained hearts (not to mention fed hungry bellies too many times to count). Most would say it is unnecessary, but we spend time every day thinking how we can say thank you . . . not to repay a debt (impossible) but to allow a glimpse of how important each act of service has been for our family.
Sarah will head back to the clinic with Eddie tomorrow . . . we are now going to hospital once every other week for ECHO and clinic. He is down several meds and will be off the steroids within the next week. We wish he would eat more . . . it is still like pulling teeth to get him to eat his meals, but at least he is eating a broader variety of foods. Can you believe we've had to bribe him to eat things like bacon? And he still won't touch Nutella!
More later . . . including pics.