22 February 2012

Celebrating Over Pizza (and Ice Cream)!

The family took a break yesterday to celebrate Eddie's listing with our friends at Frankie's. They were kind enough to provide Eddie with some much needed fat content, and I won't deny that the rest of the family helped clean the plate :-)


21 February 2012

Making it Real

Quick update. Just got off the phone with the hospital and it's now official . . . Eddie is on the transplant waitlist as status 1a, by exception (read sections 3.7.3, 3.7.4, and 3.7.5 here if you're interested in the arcane details of organ allocation and status determination). UNOS will hold a conference call with our doctors two weeks from today to review the exception details (hypertrophic condition and aborted sudden cardiac death episode), but no one believes they will challenge.

So now the wait begins . . .

Thanks to everyone for your continued thoughts, prayers, flowers, treats, meals, kind words, hugs, visits, childcare offers, rides . . . the list only continues to expand and your creativity seems to know no bounds.

We love you!